Welcome to wheeler's warriors!
Battling Batten and Finding a Cure
Welcome to wheeler's warriors!
Battling Batten and Finding a Cure
Battling Batten and Finding a Cure
Battling Batten and Finding a Cure
Wheeler has endured so much in just five years, but we remain hopeful! This video was created to show the trials, tribulations, and hopefully one day, TRIUMPH over Batten!
CLN3, Juvenile Batten Disease, is an ultra-rare, fatal, inherited disorder that primarily affects the nervous system. Children with CLN3 disease develop normally until ages 4–6 years, when progressive vision loss becomes noticeable. Typically, within 2–3 years after symptom onset, total vision loss occurs, and seizures begin, followed by declining speech and the progressive loss of motor coordination. Eventually, children become wheelchair-bound, bed-ridden, and die in their late teens to late twenties.
Wheeler was born three weeks early at a healthy 9lbs 6oz and 20 3/4in long. He was diagnosed at just four weeks old, making him one of the youngest, pre-symptomatic cases to our knowledge. Full of life and energy, Wheeler loves playing outside, traveling, eating, and being with his loved ones. At almost four years old, Wheeler is showcasing his strength and determination in every way. He enjoys his horse therapy, trips to the playground, walking his puppies, and climbing and jumping on everything possible. Most of all, Wheeler is sweet, kind, and has a heart of gold.
1. Pray - we firmly believe prayer can move mountains
2. Follow us on social: Facebook: @wheelerswarrior Instagram: @wheelerswarriors Twitter: @wheelerswarrior
for updates and become one of #WheelersWarriors
3. Contribute- Our friends have started a GoFundMe for Wheeler. The money raised will go directly to a Special Needs Trust for Wheeler *NOT tax-deductible*
4. Donate- we have a research fund under Beyond Batten, a 501C3 *Tax-deductible*
5. Share this post with your networks and communities.
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